Abstract
Background and Objectives: The rapid growth of information technology and the expansion of the Internet across the globe lead to human societies faster access to information. Meanwhile, medical findings have become more prominent due to the importance of application in human life. Both patients and their providers tend to get the latest medical findings with a quick and easy way. One of the chronic diseases that many people encounter with them are mental illnesses, and the most common is schizophrenia. Interaction with patients with schizophrenia is sometimes challenging providers. Caregivers of these patients should have the necessary knowledge about the principles of care for these patients. Acquiring knowledge requires access to credible and cited sources. Today, easy access to the Internet and information technology has created a way to increase knowledge and awareness among protector of schizophrenic patients. This study aimed Developing and evaluating of Schizophrenia website and assessing its impact on health knowledge of families of Schizophrenia patients. in Kerman city in 1395.
Methods: This study is an applied study which was done by the descriptive-sectional method in Kerman city, in 1395- 1396. Firstly, by a semi-structured questionnaire, the information needs of the families of patients with schizophrenia were identified. Then, considering the patient's information needs, the website was designed using ASP.NET software and was approved by the experts in terms of content. Then, in an experimental study, using the structured questionnaire, health knowledge of protector before and after the implementation of the website was examined. The validity of the used questionnaires in this study was evaluated by three experts and their stability was confirmed by using Cronbach's alpha coefficient with correlation coefficient of 0.8. After website design, user satisfaction was measured, the website was introduced to the families of schizophrenia patients and others, and they were asked to visit the website for a period of 1 month. The satisfaction of families and other visitors from the site was also examined using a questionnaire placed on the website. Data analysis was done by SPSS and Excel soft wares using descriptive statistics (including abundance calculation, percentage, and average) and analytical (including paired-samples T-test).
Results: Results show that 90% of the subjects have access to the Internet and the most information need of the families of schizophrenic patients were regarding the treatment of patients, general information on the disease and prevention and medication. People have expressed a strong desire to create a website for the purpose of accessing to information about schizophrenia. The findings showed that there is a significant difference between the overall average scores Health knowlege before and after the implementation of the website (p = 0.039), and this average increases after using the web site (54.25) compare to before using it (49.3). In this study, the results of the findings indicated that there was a significant difference between the mean scores of health knowledge in most of the subjects. Meanwhile, the highest average score, after using the website, was related to the score subjects obtained regarding common symptom of schizophrenia (4.15%), disease symptoms (3.1%), minimum time for the effect of medicinal therapy (3.5%), the best way to improve the condition of the patient after medical treatment (2.7%). This website has 13 main menus (introduction, patient empowerment, strategies, illusion control, patient compliance, response to delirium, elusions, marriage with patients with schizophrenia, exercise, nutrition, what you need to know, communication with us, about us and our services). The strategies menu included 3 sub-menus and the menu what you need to know has 4 sub-menus and our services include 3 sub-menus. During the 1 month period, 2500 people visited this website, and 138 people completed the questionnaire. Findings of the present study indicated that 86 percent (119 person) of users indicated ease of use of the website, and 68 person (49 percent) of users also were satisfied with the speed of access to the website. In addition, the majority of respondents, 125 users (90.5%), said that the existence of such a website is beneficial for schizophrenic patients.
Conclusion: Schizophrenia is considered to be the most severe psychiatric disorder that affects the quality of life of individuals and families. If families of patients become aware of their illness and have the necessary knowledge about the disease including: nutrition and the way to deal with the disease, medication treatment, and etc., they can play an effective role in the treatment and recovery process. Since many users search for their medical information in the website environment and this information affects their decision making, in this regard, it is important to provide accurate, comprehensive, and understandable information. The results of the need-assessment study were used to create a specialized website for schizophrenia (schizo.knrc.kmu.ac.ir). By using this website, information was provided to the families of patients about schizophrenia. Finally, health knowledge was evaluated before and after the implementation of the website. Generally, the findings of this section showed that in most cases the average score of health knowledge had significantly improved. The highest increase of the scores were related to the score subjects obtained in common symptom in schizophrenia, the symptoms of the disease, the minimum duration of medicinal therapy. In this study, the results of user satisfaction from the website showed that users were satisfied with the quality of services provided by the website and found it useful for schizophrenic patients. Also, users had requested the addition of the following sections regarding interaction with patients and patients' families and the introduction of specialists in the field of schizophrenia, news and scientific achievements in this field.
Key words: Schizophrenia, Evaluation, examining,Health knowlege, Design, Website.